Been struggling this week with not sleeping well and unable to get comfy, which is doing my head in. Also whoever said you dont really get pain with MND wants to walk in my shoes for a day! my hands and arms hurt wherever i have them, it would be far better if i cut them off, they just get in way. shoulders, hips, back all hurt or ache and this is what spoils my sleep.
I have decided to create this website about Fighting My Losing Battle against Motor Neurone Disease (MND) which is a progressive TERMINAL illness that affects around 2 in 100,000 people and will KILL most within 2-5 years. My intension with this site is to try and do my little bit to raise awareness and also log how my battle goes, ups and downs. I will post regular updates as much as i can.
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