Off to the NIV clinic tomorrow, i cant say im over the moon about it, i never relish these appointments. My hands are really giving me shit and causing a lot of pain! its like really severe pins and needles constantly nagging me, just resting them on a soft pillow doesnt help, add back, shoulders, ankles and arms to the list of pains, then the food, speaking and the mental torture of dealing this lot takes some doing. I wish i could just have break from it, fat chance of that. Also losing out on lots with Hollie, not being able to give her a hug when shes here or when shes upset breaks my heart, its one fucker of a disease!
Not much on the positive side at the moment and i struggle to see anything changing.
I have decided to create this website about Fighting My Losing Battle against Motor Neurone Disease (MND) which is a progressive TERMINAL illness that affects around 2 in 100,000 people and will KILL most within 2-5 years. My intension with this site is to try and do my little bit to raise awareness and also log how my battle goes, ups and downs. I will post regular updates as much as i can.
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